Jaron and I flew up to Boston Wednesday July 20th.
He had a speech study on Thursday. They put barium in his nose and had him repeat sentences all while watching his soft palate move in the X-ray machine. We wanted to see if air is escaping out the nose when he talks, resulting in a more nasal voice. It is a little short but no rush to do a pflap surgery. It's optional.
Then I decided to take him to Lego Discovery center Friday afternoon. Knowing he was about to go through something very uncomfortable I was trying to make this weekend before, as fun as possible.
After a couple hours we were looking around in the gift shop and one of the managers asked me if we needed any help. I proceeded to tell him what Jaron wanted me to buy but I could not afford it. Then I told him we were here in Boston for his surgery. He asked me if we got free tickets from the hospital to get in that day. I told him no, I had to pay full price. He asked me to give him a receipt so he could refund my money.
It was $35 admission. When we walked out the door Jaron said "mommy this is the best day ever!"
Saturday and Sunday we relaxed in the hotel room chowing down on all his favorite snacks before surgery Monday morning
We did go outside to the hospital garden a few times and got out of the room as much as possible.
We will be staying in town for a few post op visits before we fly back home to South Dakota.