Friday, June 24, 2016

Preparing for Surgery

Its just going to be Jaron and I going for 13 days total. July 20-Aug. 2. He has a speech study and pre-op before surgery. We also have to stay in town a week after surgery for post op visits. So it's not going to be cheap. Staying at a hotel in Boston is expensive and we definitely cannot afford 6 plane tickets for the whole family to go or a hotel room for all of us to sleep comfortably. 
It would be about $6000 for all of us to go.

This will be the first time I have been away from my kids that long. I think Jonah is going to have the hardest time with it. Jaron has never been away from his brothers that long either. They are all so close because we homeschool they are like best friends. Its going to be very hard emotionally. I think having family there would be good moral support for us. Chris has to take off work to stay home with the others. I wish there was a way we could all be together as a family.

After surgery he will not be able to chew anything for 6 weeks! We will have to find a store before surgery to buy him some soft/puree foods that he can eat post op.  I will also be bringing my mini blender with me. We are just praying God provides all our needs for this trip. I have applied for Miracle Flights to get mine and Jaron's ticket. (they only cover the patient and one parent)
I also applied for assistance with hotel and meals with Children's Craniofacial Association.  

I am really trying not to worry about the money. This is a necessary surgery and I am taking Jaron to the best doctors in the country. This is his face, his smile, his future. People judge us by our appearance. First impressions mean a lot in getting a job, making friends and one day finding a wife. I just want Jaron to live a normal life and not feel different or like an outcast. I want him to also be able to chew his food properly and getting this bone graft is going to enable the doctors to make room for more teeth and proceed with the next step in aligning his teeth.

 If you would like to donate to help out with our travel expenses just click on the link below. 

Thursday, June 16, 2016

Dental dilemmas....

When we left Georgia all 4 boys had a cleaning at the dentist and Justus did not have any cavities. Then we moved out here to South Dakota and he started getting a black spot on one of his teeth and saying it was hurting. So I took him to the local dentist in Chamberlain and he said he had several cavities but did not feel comfortable working on a 5 year old so he referred me to nearest pediatric dentist in Pierre (1.5 hrs away)

So we drove out there in April and they did X-rays then informed me Justus had 7 cavities and needed 5 silver crowns!!! I was in tears feeling like the worst mom ever! They would not fill the one that was hurting him that day. She scheduled to have him put to sleep and fix them all at once.
(First Available is June 24th!!!) we left that day with no relief!

So while we waited for his upcoming "surgery", Jacob started having pain in his jaws in the back like his wisdom teeth. So I found a regular family dentist in Mitchell (1 hour away) to get Jacob checked out. We liked him so I asked if they were willing to work on a 5 year old. They were more than willing to try.

So I scheduled Justus an appointment with him to try and do a filling and avoid getting put to sleep. Last week we took Justus to his first appointment and he was a little nervous but the laughing gas helped out a lot and he was able to fill the biggest cavity, so we made another appointment to do some more.

Yesterday we went back to Mitchell for Jaron's orthodontist appointment. Since he got the expander put in his mouth he has lost 2 baby teeth and its making the expansion nearly impossible. So he removed the expander for now and said we need to wait 6 months for him to lose the rest of his baby teeth and hopefully his permanent teeth will grown in for the ortho to anchor a new expander to them. Needless to say Jaron is very happy to have that annoying thing out of his mouth. After his orthodontist spoke to the surgeon in Boston they decided he still needs the bone graft surgery July 25th. Please pray for us as we try to prepare for this trip.



Next, I took Justus back in for another filling and he did even better this time. We also cancelled the "surgery" for the pediatric dentist in Pierre as I felt it was a little extreme and unnecessary. The dentist in Mitchell agreed with me that he didn't need 5 silver crowns.

I am not sure why his teeth are doing so poorly since we moved here. Maybe he's eating more candy, not likely, or maybe its something different in the water. All the boys drink is 99.9% water.
{I think its the water-it leaves spots on everything-evidence of sediment}

Monday, June 06, 2016

Florida Family Fun

My stepmom Tammy was turning 50 and my dad wanted to make her birthday special so he flew me and the boys down to Florida and we surprised her. She had NO IDEA we were waiting for her at her house when she walked in from work that day!
 The plane rides were fun, it was Justus' first time on a plane.

 We got to visit my grandparents Mimi & Papa.
 They swam a lot in Aunt Tonia's pool.
Justus was practicing swimming with Pepe
 The plane train in Atlanta was fun too! We had a 5 hour layover there so my mom and stepdad came to visit.

 They boys also got to meet their cousin December and Uncle Travis from New Hampshire.

 We are so thankful for the opportunity to visit with family and celebrate Meme's birthday with her. It was quite an adventure!