Its just going to be Jaron and I going for 13 days total. July 20-Aug. 2. He has a speech study and pre-op before surgery. We also have to stay in town a week after surgery for post op visits. So it's not going to be cheap. Staying at a hotel in Boston is expensive and we definitely cannot afford 6 plane tickets for the whole family to go or a hotel room for all of us to sleep comfortably.
It would be about $6000 for all of us to go.
This will be the first time I have been away from my kids that long. I think Jonah is going to have the hardest time with it. Jaron has never been away from his brothers that long either. They are all so close because we homeschool they are like best friends. Its going to be very hard emotionally. I think having family there would be good moral support for us. Chris has to take off work to stay home with the others. I wish there was a way we could all be together as a family.
After surgery he will not be able to chew anything for 6 weeks! We will have to find a store before surgery to buy him some soft/puree foods that he can eat post op. I will also be bringing my mini blender with me. We are just praying God provides all our needs for this trip. I have applied for Miracle Flights to get mine and Jaron's ticket. (they only cover the patient and one parent)
I also applied for assistance with hotel and meals with Children's Craniofacial Association.
I am really trying not to worry about the money. This is a necessary surgery and I am taking Jaron to the best doctors in the country. This is his face, his smile, his future. People judge us by our appearance. First impressions mean a lot in getting a job, making friends and one day finding a wife. I just want Jaron to live a normal life and not feel different or like an outcast. I want him to also be able to chew his food properly and getting this bone graft is going to enable the doctors to make room for more teeth and proceed with the next step in aligning his teeth.
If you would like to donate to help out with our travel expenses just click on the link below.